ciencia abierta

Collaborative culture and citizen open data projects are key to democratic access to information. This contributes to free knowledge that allows innovation to be promoted and citizens to be empowered.

In this new episode of the datos.gob.es podcast, we are joined by two professionals linked to citizen projects that have revolutionized the way we access, create and reuse knowledge. We welcome:

• Florencia Claes, professor and coordinator of Free Culture at the Rey Juan Carlos University, and former president of Wikimedia Spain.
• Miguel Sevilla-Callejo, researcher at the CSIC (Spanish National Research Council) and Vice-President of the OpenStreetMap Spain association.

Listen the episode (in spanish) 

1. How would you define free culture?

Florencia Claes: It is any cultural, scientific, intellectual expression, etc. that as authors we allow any other person to use, take advantage of, reuse, intervene in and relaunch into society, so that another person does the same with that material.

In free culture, licenses come into play, those permissions of use that tell us what we can do with those materials or with those expressions of free culture.

2. What role do collaborative projects have within free culture?

Miguel Sevilla-Callejo: Having projects that are capable of bringing together these free culture initiatives is very important. Collaborative projects are horizontal initiatives in which anyone can contribute. A consensus is structured around them to make that project, that culture, grow.

3. You are both linked to collaborative projects such as Wikimedia and OpenStreetMap. How do these projects impact society?

Florencia Claes: Clearly the world would not be the same without Wikipedia. We cannot conceive of a world without Wikipedia, without free access to information. I think Wikipedia is associated with the society we are in today. It has built what we are today, also as a society. The fact that it is a collaborative, open, free space, means that anyone can join and intervene in it and that it has a high rigor.

So, how does it impact? It impacts that (it will sound a little cheesy, but...) we can be better people, we can know more, we can have more information. It has an impact on the fact that anyone with access to the internet, of course, can benefit from its content and learn without necessarily having to go through a paywall or be registered on a platform and change data to be able to appropriate or approach the information.

Miguel Sevilla-Callejo: We call OpenStreetMap the Wikipedia of maps, because a large part of its philosophy is copied or cloned from the philosophy of Wikipedia. If you imagine Wikipedia, what people do is they put encyclopedic articles. What we do in OpenStreetMap is to enter spatial data. We build a map collaboratively and this assumes that the openstreetmap.org page, which is where you could go to look at the maps, is just the tip of the iceberg. That's where OpenStreetMap is a little more diffuse and hidden, but most of the web pages, maps and spatial information that you are seeing on the Internet, most likely in its vast majority, comes from the data of the great free, open and collaborative database that is OpenStreetMap.

Many times you are reading a newspaper and you see a map and that spatial data is taken from OpenStreetMap. They are even used in agencies: in the European Union, for example, OpenStreetMap is being used. It is used in information from private companies, public administrations, individuals, etc. And, in addition, being free, it is constantly reused.

I always like to bring up projects that we have done here, in the city of Zaragoza. We have generated the entire urban pedestrian network, that is, all the pavements, the zebra crossings, the areas where you can circulate... and with this a calculation is made  of how you can move around the city on foot. You can't find this information on sidewalks, crosswalks and so on on a website because it's not very lucrative, such as getting around by car, and you can take advantage of it, for example, which is what we did in some jobs that I directed at university, to be able to know how different mobility is with blind people.  in a wheelchair or with a baby carriage.

4. You are telling us that these projects are open. If a citizen is listening to us right now and wants to participate in them, what should they do to participate? How can you be part of these communities?

Florencia Claes: The interesting thing about these communities is that you don't need to be formally associated or linked to them to be able to contribute. In Wikipedia you simply enter the Wikipedia page and become a user, or not, and you can edit. What is the difference between making your username or not? In that you will be able to have better access to the contributions you have made, but we do not need to be associated or registered anywhere to be able to edit Wikipedia.

If there are groups at the local or regional level related to the Wikimedia Foundation that receive grants and grants to hold meetings or activities. That's good, because you meet people with the same concerns and who are usually very enthusiastic about free knowledge. As my friends say, we are a bunch of geeks who have met and feel that we have a group of belonging in which we share and plan how to change the world.

Miguel Sevilla-Callejo: In OpenStreetMap it is practically the same, that is, you can do it alone. It is true that there is a bit of a difference with respect to Wikipedia. If you go to the openstreetmap.org page, where we have all the documentation – which is wiki.OpenStreetMap.org – you can go there and you have all the documentation.

It is true that to edit in OpenStreetMap you do need a user to better track the changes that people make to the map. If it were anonymous there could be more of a problem, because it is not like the texts in Wikipedia. But as Florencia said, it's much better if you associate yourself with a community.

We have local groups in different places. One of the initiatives that we have recently reactivated is the OpenStreetMap Spain association, in which, as Florencia said, we are a group of those who like data and free tools, and there we share all our knowledge. A lot of people come up to us and say "hey, I just entered OpenStreetMap, I like this project, how can I do this? How can I do the other?"And well, it's always much better to do it with other colleagues than to do it alone. But anyone can do it.

5. What challenges have you encountered when implementing these collaborative projects and ensuring their sustainability over time? What are the main challenges, both technical and social, that you face?

Miguel Sevilla-Callejo: One of the problems we find in all these movements that are so horizontal and in which we have to seek consensus to know where to move forward, is that in the end it is relatively problematic to deal with a very diverse community. There is always friction, different points of view... I think this is the most problematic thing. What happens is that, deep down, as we are all moved by enthusiasm for the project, we end up reaching agreements that make the project grow, as can be seen in Wikimedia and OpenStreetMap themselves, which continue to grow and grow.

From a technical point of view, for some things in particular, you have to have a certain computer prowess, but we are very, very basic. For example, we have made mapathons, which consist of us meeting in an area with computers and starting to put spatial information in areas, for example, where there has been a natural disaster or something like that. Basically, on a satellite image, people place little houses where they see - little houses there in the middle of the Sahel, for example, to help NGOs such as Doctors Without Borders. That's very easy: you open it in the browser, open OpenStreetMap and right away, with four prompts, you're able to edit and contribute.

It is true that, if you want to do things that are a little more complex, you have to have more computer skills. So it is true that we always adapt. There are people who are entering data in a very pro way, including buildings, importing data from the cadastre... and there are people like a girl here in Zaragoza who recently discovered the project and is entering the data they find with an application on their mobile phone.

I do really find a certain gender bias in the project. That within OpenStreetMap worries me a little, because it is true that a large majority of the people we are editing, including the community, are men and that in the end does mean that some data has a certain bias. But hey, we're working on it.

Florencia Claes: In that sense, in the Wikimedia environment, that also happens to us. We have, more or less worldwide, 20% of women participating in the project against 80% of men and that means that, for example, in the case of Wikipedia, there is a preference for articles about footballers sometimes. It is not a preference, but simply that the people who edit have those interests and as they are more men, we have more footballers, and we miss articles related, for example, to women's health.

So we do face biases and we face that coordination of the community. Sometimes people with many years participate, new people... and achieving a balance is very important and very difficult. But the interesting thing is when we manage to keep in mind or remember that the project is above us, that we are building something, that we are giving something away, that we are participating in something very big. When we become aware of that again, the differences calm down and we focus again on the common good which, after all, I believe is the goal of these two projects, both in the Wikimedia environment and OpenStreetMap.

6. As you mentioned, both Wikimedia and OpenStreetMap are projects built by volunteers. How do you ensure data quality and accuracy?

Miguel Sevilla-Callejo: The interesting thing about all this is that the community is very large and there are many eyes watching. When there is a lack of rigor in the information, both in Wikipedia – which people know more about – but also in OpenStreetMap, alarm bells go off. We have tracking systems and it's relatively easy to see dysfunctions in the data. Then we can act quickly. This gives a capacity, in OpenStreetMap in particular, to react and update the data practically immediately and to solve those problems that may arise also quite quickly. It is true that there has to be a person attentive to that place or that area.

I've always liked to talk about OpenStreetMap data as a kind of - referring to it as it is done in the software - beta map, which has the latest, but there can be some minimal errors. So, as a strongly updated and high-quality map, it can be used for many things, but for others of course not, because we have another reference cartography that is being built by the public administration.

Florencia Claes: In the Wikimedia environment we also work like this, because of the mass, because of the number of eyes that are looking at what we do and what others do. Each one, within this community, is assuming roles. There are roles that are scheduled, such as administrators or librarians, but there are others that simply: I like to patrol, so what I do is keep an eye on new articles and I could be looking at the articles that are published daily to see if they need any support, any improvement or if,  on the contrary, they are so bad that they need to be removed from the main part or erased.

The key to these projects is the number of people who participate and everything is voluntary, altruistic. The passion is very high, the level of commitment is very high. So people take great care of those things. Whether data is curated to upload to Wikidata or an article is written on Wikipedia, each person who does it, does it with great affection, with great zeal. Then time goes by and he is aware of that material that he uploaded, to see how it continued to grow, if it was used, if it became richer or if, on the contrary, something was erased.

Miguel Sevilla-Callejo: Regarding the quality of the data, I find interesting, for example, an initiative that the Territorial Information System of Navarre has now had. They have migrated all their data for planning and guiding emergency routes to OpenStreetMap, taking their data. They have been involved in the project, they have improved the information, but taking what was already there [in OpenStreetMap], considering that they had a high quality and that it was much more useful to them than using other alternatives, which shows the quality and importance that this project can have.

7. This data can also be used to generate open educational resources, along with other sources of knowledge. What do these resources consist of and what role do they play in the democratization of knowledge?

Florencia Claes:  OER, open educational resources, should be the norm. Each teacher who generates content should make it available to citizens and should be built in modules from free resources. It would be ideal.

What role does the Wikimedia environment have in this? From housing information that can be used when building resources, to providing spaces to perform exercises or to take, for example, data and do work with SPARQL. In other words, there are different ways of approaching Wikimedia projects in relation to open educational resources. You can intervene and teach students how to identify data, how to verify sources, to simply make a critical reading of how information is presented, how it is curated, and make, for example, an assessment between languages.

Miguel Sevilla-Callejo: OpenStreetMap is very similar. What's interesting and unique is what the nature of the data is. It's not exactly information in different formats like in Wikimedia. Here the information is that free spatial database that is OpenStreetMap. So the limits are the imagination.

I remember that there was a colleague who went to some conferences and made a cake with the OpenStreetMap map. He would feed it to the people and say, "See? These are maps that we have been able to eat because they are free." To make more serious or more informal or playful cartography, the limit is only your imagination. It happens exactly the same as with Wikipedia.

8. Finally, how can citizens and organizations be motivated to participate in the creation and maintenance of collaborative projects linked to free culture and open data?

Florencia Claes: I think we have to clearly do what Miguel said about the cake. You have to make a cake and invite people to eat cake. Seriously talking about what we can do to motivate citizens to reuse this data, I believe, especially from personal experience and from the groups with which I have worked on these platforms, that the interface is friendly is a very important step.

In Wikipedia in 2015, the visual editor was activated. The visual editor made us join many more women to edit Wikipedia. Before, it was edited only in code and code, because at first glance it can seem hostile or distant or "that doesn't go with me". So, to have interfaces where people don't need to have too much knowledge to know that this is a package that has such and such data and I'm going to be able to read it with such a program or I'm going to be able to dump it into such and such a thing and make it simple, friendly, attractive... I think that this is going to remove many barriers and that it will put aside the idea that data is for computer scientists. And I think that data goes further, that we can really take advantage of all of them in very different ways. So I think it's one of the barriers that we should overcome.

Miguel Sevilla-Callejo: It didn't happen to us that until about 2015 (forgive me if it's not exactly the date), we had an interface that was quite horrible, almost like the code edition you have in Wikipedia, or worse, because you had to enter the data knowing the labeling, etc. It was very complex. And now we have an editor that basically you're in OpenStreetMap, you hit edit and a super simple interface comes out. You don't even have to put labeling in English anymore, it's all translated. There are many things pre-configured and people can enter the data immediately and in a very simple way. So what that has allowed is that many more people come to the project.

Another very interesting thing, which also happens in Wikipedia, although it is true that it is much more focused on the web interface, is that around OpenStreetMap an ecosystem of applications and services has been generated that has made it possible, for example, to appear mobile applications that, in a very fast, very simple way, allow data to be put directly on foot on the ground. And this makes it possible for people to enter the data in a simple way.

I wanted to stress it again, although I know that we are reiterating all the time in the same circumstance, but I think it is important to comment on it, because I think that we forget that within the projects: we need people to be aware again that data is free, that it belongs to the community,  that it is not in the hands of a private company, that it can be modified, that it can be transformed, that behind it there is a community of voluntary, free people, but that this does not detract from the quality of the data, and that it reaches everywhere. So that people come closer and don't see us as a weirdo. I think that Wikipedia is much more integrated into society's knowledge and now with artificial intelligence much more, but it happens to us in OpenStreetMap, that they look at you like saying "but what are you telling me if I use another application on my mobile?" or you're using ours, you're using OpenStreetMap data without knowing it. So we need to get closer to society, to get them to know us better.

Returning to the issue of association, that is one of our objectives, that people know us, that they know that this data is open, that it can be transformed, that they can use it and that they are free to have it to build, as I said before, what they want and the limit is their imagination.

Florencia Claes: I think we should somehow integrate through gamification, through games in the classroom, the incorporation of maps, of data within the classroom, within the day-to-day schooling. I think we would have a point in our favour there. Given that we are within a free ecosystem, we can integrate visualization or reuse tools on the same pages of the data repositories  that I think would make everything much friendlier and give a certain power to citizens, it would empower them in such a way that they would be encouraged to use them.

Miguel Sevilla-Callejo:  It's interesting that we have things that connect both projects (we also sometimes forget the people of OpenStreetMap and Wikipedia), that there is data that we can exchange, coordinate and add. And that would also add to what you just said.

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Open data is a fundamental fuel for contemporary digital innovation, creating information ecosystems that democratise access to knowledge and foster the development of advanced technological solutions.

However, the mere availability of data is not enough.  Building robust and sustainable ecosystems requires clear regulatory frameworks, sound ethical principles and management methodologies that ensure both innovation and the protection of fundamental rights. Therefore, the specialised documentation that guides these processes becomes a strategic resource for governments, organisations and companies seeking to participate responsibly in the digital economy.

In this post, we compile recent reports, produced by leading organisations in both the public and private sectors, which offer these key orientations. These documents not only analyse the current challenges of open data ecosystems, but also provide practical tools and concrete frameworks for their effective implementation.

State and evolution of the open data market

Knowing what it looks like and what changes have occurred in the open data ecosystem at European and national level is important to make informed decisions and adapt to the needs of the industry.  In this regard, the European Commission publishes, on a regular basis, a Data Markets Report, which is updated regularly. The latest version is dated December 2024, although use cases exemplifying the potential of data in Europe are regularly published (the latest in February 2025).

 On the other hand, from a European regulatory perspective, the latest annual report on the implementation of the Digital Markets Act (DMA)takes a comprehensive view of the measures adopted to ensure fairness and competitiveness in the digital sector. This document is interesting to understand how the regulatory framework that directly affects open data ecosystems is taking shape.

At the national level, the ASEDIE sectoral report on the "Data Economy in its infomediary scope" 2025 provides quantitative evidence of the economic value generated by open data ecosystems in Spain.

The importance of open data in AI

It is clear that the intersection between open data and artificial intelligence is a reality that poses complex ethical and regulatory challenges that require collaborative and multi-sectoral responses. In this context, developing frameworks to guide the responsible use of AI becomes a strategic priority, especially when these technologies draw on public and private data ecosystems to generate social and economic value. Here are some reports that address this objective:

• Generative IA and Open Data: Guidelines and Best Practices: the U.S. Department of Commerce. The US government has published a guide with principles and best practices on how to apply generative artificial intelligence ethically and effectively in the context of open data. The document provides guidelines for optimising the quality and structure of open data in order to make it useful for these systems, including transparency and governance.
• Good Practice Guide for the Use of Ethical Artificial Intelligence: This guide demonstrates a comprehensive approach that combines strong ethical principles with clear and enforceable regulatory precepts.. In addition to the theoretical framework, the guide serves as a practical tool for implementing AI systems responsibly, considering both the potential benefits and the associated risks. Collaboration between public and private actors ensures that recommendations are both technically feasible and socially responsible.
• Enhancing Access to and Sharing of Data in the Age of AI: this analysis by the Organisation for Economic Co-operation and Development (OECD) addresses one of the main obstacles to the development of artificial intelligence: limited access to quality data and effective models. Through examples, it identifies specific strategies that governments can implement to significantly improve data access and sharing and certain AI models.
• A Blueprint to Unlock New Data Commons for AI: Open Data Policy Lab has produced a practical guide that focuses on the creation and management of data commons specifically designed to enable cases of public interest artificial intelligence use. The guide offers concrete methodologies on how to manage data in a way that facilitates the creation of these data commons, including aspects of governance, technical sustainability and alignment with public interest objectives.
• Practical guide to data-driven collaborations: the Data for Children Collaborative initiative has published a step-by-step guide to developing effective data collaborations, with a focus on social impact. It includes real-world examples, governance models and practical tools to foster sustainable partnerships.

In short, these reports define the path towards more mature, ethical and collaborative data systems. From growth figures for the Spanish infomediary sector to European regulatory frameworks to practical guidelines for responsible AI implementation, all these documents share a common vision: the future of open data depends on our ability to build bridges between the public and private sectors, between technological innovation and social responsibility.

On 16 May, Lanzarote became the epicentre of open culture and open data in Spain with the celebration of the IV Encuentro Nacional de Datos Abiertos (ENDA). Under the slogan "Data in the culture of open knowledge", this edition brought together more than a hundred experts, professionals and open data enthusiasts to reflect on how to boost the development and progress of our society through free access to information.

The event, held in the emblematic Jameos del Agua Auditorium, was organised by the Government of the Canary Islands, through the Directorate General for the Digital Transformation of Public Services, the Directorate General for Transparency and Citizen Participation, the Canary Islands Institute of Statistics and the Island Council of Lanzarote under the brand "Canarias Datos Abiertos".

The transformation to data-driven organisations

The day began with the inauguration by Antonio Llorens de la Cruz, Vice Councillor for Administrations and Transparency of the Government of the Canary Islands, and Miguel Ángel Jiménez Cabrera, Councillor of the Area of Presidency, Human Resources, New Technologies, Energy, Housing, Transport, Mobility and Accessibility of the Island Council of Lanzarote.

This was followed by a talk by Óscar Corcho García, Professor at the Polytechnic University of Madrid, who addressed the " Challenges in the transformation of an organisation to be data-centric, using knowledge graphs. The case of the European Railway Agency ". Corcho presented the case study of the European Railway Agency (ERA).

In his presentation, Corcho insisted that the transformation from a traditional to a data-driven organisation goes far beyond technology implementation. This transformation process requires strengthening the legal framework, harmonising processes, vocabularies and master data, establishing governance of the ontology model and creating a community of users to further enrich the model.

In this process, metadata, data catalogues and reference data are key elements. In addition, knowledge graphs are essential tools for connecting and integrating data from proprietary systems.

Open data for science in the service of public decisions

The first of the roundtables addressed how open data can serve science to improve public decisions. Participants highlighted the need to strengthen the data economy, move towards technological sovereignty and promote effective citizen participation.

Diego Ramiro Fariñas, Director of the Institute of Economics, Geography and Demography of the Spanish National Research Council (CSIC), highlighted:

• The importance of longitudinal data infrastructures, i.e. data that are collected over time for the same units.
• The value of linked data in breaking down information silos.
• The need to preserve statistical heritage.
•  The project Es_Datalab, which allows cross-referencing data such as those of the Tax Agency with those of Health.
•  The potential of synthetic data to reduce bias in AI applications.

Ramiro Fariñas also emphasised that the National Statistics Institute has transformed its entire statistical production towards data mining, and that leading institutes such as the Canary Islands and Andalusia are improving the publication of data to improve public policies. He pointed out two fundamental aspects: the need for greater interlocution between data producers and the training of administration staff to overcome the main barriers to putting science at the service of public decisions.

Izaskun Lacunza Aguirrebengoa, Director of the Spanish Foundation for Science and Technology (FECYT), stressed the importance of transforming the model of science, making it easier for scientific institutions to protect and share research information. He explained the concept of open science in contrast to some of the current practices, where knowledge generated with public funds ends up being controlled by private oligopolies that subsequently sell this processed information to the very institutions that generated it. Lacunza advocated public-public collaboration through initiatives such as the Office of Science and Technology in Congress.

Another participant in this round table was Tania Gullón Muñoz-Repiso, Coordinator of the Innovation and Geospatial Analysis Area of the Ministry of Transport and Sustainable Mobility, who shared how data is crucial for the management of emergencies such as the DANA. The Ministry's mobility data has hundreds of reusers, drives new businesses and enables predictive modelling. Gullón insisted that it is key that the data provided by citizens include an explanation of how it has been used, considering this feedback fundamental to give value to open science.

Open culture: removing barriers to knowledge

The round table "Open culture: how data brings us closer to knowledge" discussed how to remove barriers to access, study and transformation of knowledge so that it can be returned to society and its potential can be harnessed.

In this thematic block, Florencia Claes, Academic Director of Free Culture at the Office of Free Knowledge and Culture (OfiLibre) of the Universidad Rey Juan Carlos (URJC), defined open culture as the current that seeks access to knowledge without barriers and the possibility of being able to appropriate that knowledge, study it and share it again with society. He highlighted interesting ideas such as that publishing content on the internet does not automatically mean that it is open, as open content must meet certain standards and conditions that are not always met.

 Claes explained the value of Open Educational Resources (OER) and how the URJC has a specific office to disseminate open culture, open science and open data. He pointed out that there is a deficiency in the training of university teaching staff on licensing and OER, considering this training as a key element to advance in the culture of openness.

In addition, he stressed that mass access to data facilitates its control, error detection and improvement. For this, initiatives such as Wikimedia or OpenStreetMap are very interesting, both projects accept voluntary participation and your contribution is essential to building and maintaining online open environments.

At the same table, Julio Cordal Elviro, Head of the Area of Library Projects and responsible for relations with Europeana at the Ministry of Culture, explained the evolution of Europeana from simple harvester to digital library, with projects based on semantic metadata, highlighting the challenges of standardisation and digital preservation of more than 60 million cultural works. He explained that the emergence of Google Books acted as a catalyst to "get the ball rolling" in this area.

Cordal also presented the Hispanaproject, which compiles information on digitised collections throughout Spain and federates with Europeana, and mentioned that they have begun to generate OER. He underlined how the use of technologies such as OCR (rOptical Character Recognition) and the online availability of funds makes it easier for researchers to save infinite time in their work. "When you make data open and free, you are opening up new opportunities," he concluded.

On the other hand, José Luis Bueren Gómez-Acebo, Technical Directorof the National Library of Spain (BNE), shared the digital transformation process of the institution, its commitment to open licences and the importance of the emotional component that drives citizen participation in cultural projects.

Bueren explained how the BNE continues its work of compiling and digitising all the bibliographic works produced in Spain, keeping connected with Wikidata and other international libraries in a standardised way. Through initiatives such as BNE Data, they offer a more practical and didactic vision of the information they publish.

He stressed the importance of citizens re-appropriating the cultural content, feeling that it is theirs, recalling that the BNE is indebted to the scientific community and to all citizens. Among the innovative projects they are promoting, he mentioned the automatic transcription of manuscripts. As challenges for the future, he pointed to sustainability, the management of intellectual property and the need for cultural institutions to be able to adapt to new trends.

Prioritisation of public data openness

As in each edition, ENDA presented a specific challenge. This year, Casey Abernethy, Technical Manager of the Asociación Multisectorial de la Información (ASEDIE), and José de León Rojas, Head of the Negociado de Modernización del Cabildo Insular de Lanzarote, presented a methodology and tool to help public administrations decide what datasets they should publish and in what order of priority, based on:

• Data sets recommended by the FEMP.
• Priority sets defined in the UNE Standard on Smart Cities and Open Data.
• High-value assemblies according to European standards.
• Sets requested by ASEDIE (Top 10 ASEDIE).
• Sets derived from transparency indices or regulations.

The proposed methodology considers three fundamental indices: organisational maturity, technical difficulty and strategic relevance. The 4th challenge in the context of the Encuentro was specifically aimed at choosing the key datasets to be published in a public administration according to its open data maturity. This methodology has been implemented in an operational tool that can be found on the Meetings website.

The power of free software and open communities

During the afternoon, the panel "Unlocking the potential of open data" highlighted how free software and open communities drive the use and exploitation of open data:

• Emilio López Cano, Professor at the Universidad Rey Juan Carlos and president of the Hispanic R Community, showed how the R community facilitates the use of open data through specific packages.
• Miguel Sevilla Callejo, Research Assistant at the Pyrenean Institute of Ecology of the CSIC and vice-president of the OpenStreetMap Spain association, presented OpenStreetMap as an invaluable source of open spatial data and highlighted its importance in emergency situations.
• Patricio del Boca, Technical Lead and member of the Open Knowledge Foundation (OKFN) CKAN technical team, explained the advantages of CKAN as an open source platform for implementing open data portals and presented the new Open Data Editor tool.

Open administrations at the service of citizens

The last round table addressed how administrations can bring data and its value closer to citizens:

• Ascensión Hidalgo Bellota, Deputy Director General for Transparency of Madrid City Council, presented "View Madrid with Open Data". Hidalgo stressed that the project has significantly reduced the number of citizen consultations thanks to its clarifying nature, thus demonstrating a double benefit: bringing data closer to the population and optimising the administration's resources.
• Carlos Alonso Peña, Director of the Design, Innovation and Exploitation Division at the Directorate General for Data, highlighted the cultural change that the Administration is undergoing, moving from data protection to responsible openness. He presented the Data Directorate General's initiatives to move beyond open data towards a single data market: the data spaces, where concrete solutions are being developed to demonstrate the business potential in this area. He also pointed to the growing importance of private data in the wake of the General Data Regulation and the obligations it establishes.
• Joseba Asiain Albisu, Director General of the Directorate General of the Presidency, Open Government and Relations with the Parliament of Navarre of the Government of Navarre, explained Navarre's strategy to improve data quality, centralise information and promote continuous evaluation. He commented on how the Government of Navarra seeks to balance quantity and quality in the publication of data, centralising data from the entire region and submitting metadata to external evaluation, with the collaboration of, among others, datos.gob.es.

The value of open data meetings

The IV ENDA has demonstrated, once again, the importance of these spaces for reflection and debate for:

• Sharing good practices and experiences between public administrations.
• Encourage collaboration between institutions, academia and the private sector.
• Promote the culture of open data as a tool for social innovation.
• Promote the development of skills in public administration staff.
• Improving public policies through information sharing.

After four consecutive editions, the National Open Data Meeting has established itself as a must-attend event for all the people and entities involved in the open data ecosystem in Spain. This event contributes significantly to building a more informed, participatory and transparent society.

ENDA will continue in 2026 with its fifth edition, committed to continue promoting the culture of open data as a driver of economic and social development in our country.  The organisation has already announced that the next edition of the event will be held in Navarre in 2026.. Follow us on social media to keep up to date with events on open data and related technologies. You can read us on Twitter (X), LinkedIn and Instagram.

Open knowledge is knowledge that can be reused, shared and improved by other users and researchers without noticeable restrictions. This includes data, academic publications, software and other available resources. To explore this topic in more depth, we have representatives from two institutions whose aim is to promote scientific production and make it available in open access for reuse:

• Mireia Alcalá Ponce de León, Information Resources Technician of the Learning, Research and Open Science Area of the Consortium of University Services of Catalonia (CSUC).
• Juan Corrales Corrillero, Manager of the data repository of the Madroño Consortium.

Listen here the podcast (in spanish)

Summary of the interview

1.Can you briefly explain what the institutions you work for do?

Mireia Alcalá: The CSUC is the Consortium of University Services of Catalonia and is an organisation that aims to help universities and research centres located in Catalonia to improve their efficiency through collaborative projects. We are talking about some 12 universities and almost 50 research centres.
We offer services in many areas: scientific computing, e-government, repositories, cloud administration, etc. and we also offer library and open science services, which is what we are closest to. In the area of learning, research and open science, which is where I am working, what we do is try to facilitate the adoption of new methodologies by the university and research system, especially in open science, and we give support to data management research.

Juan Corrales: The Consorcio Madroño is a consortium of university libraries of the Community of Madrid and the UNED (National University of Distance Education) for library cooperation.. We seek to increase the scientific output of the universities that are part of the consortium and also to increase collaboration between the libraries in other areas. We are also, like CSUC, very involved in open science: in promoting open science, in providing infrastructures that facilitate it, not only for the members of the Madroño Consortium, but also globally. Apart from that, we also provide other library services and create structures for them.

2. What are the requirements for an investigation to be considered open?

Juan Corrales: For research to be considered open there are many definitions, but perhaps one of the most important is given by the National Open Science Strategy, which has six pillars.

One of them is that it is necessary to put in open access both research data and publications, protocols, methodologies.... In other words, everything must be accessible and, in principle, without barriers for everyone, not only for scientists, not only for universities that can pay for access to these research data or publications. It is also important to use open source platforms that we can customise. Open source is software that anyone, in principle with knowledge, can modify, customise and redistribute, in contrast to the proprietary software of many companies, which does not allow all these things. Another important point, although this is still far from being achieved in most institutions, is allowing open peer review, because it allows us to know who has done a review, with what comments, etc. It can be said that it allows the peer review cycle to be redone and improved. A final point is citizen science: allowing ordinary citizens to be part of science, not only within universities or research institutes.
And another important point is adding new ways of measuring the quality of science. 

Mireia Alcalá:. I agree with what Juan says. I would also like to add that, for an investigation process to be considered open, we have to look at it globally. That is, include the entire data lifecycle. We cannot talk about a science being open if we only look at whether the data at the end is open. Already at the beginning of the whole data lifecycle, it is important to use platforms and work in a more open and collaborative way.

3 Why is it important for universities and research centres to make their studies and data available to the public?

Mireia Alcalá:. I think it is key that universities and centres share their studies, because a large part of research, both here in Spain and at European and world level, is funded with public money. Therefore, if society is paying for the research, it is only logical that it should also benefit from its results. In addition, opening up the research process can help make it more transparent, more accountable, etc. Much of the research done to date has been found to be neither reusable nor reproducible. What does this mean? That the studies that have been done, almost 80% of the time someone else can't take it and reuse that data. Why? Because they don't follow the same standards, the same mannersand so on. So, I think we have to make it extensive everywhere and a clear example is in times of pandemics. With COVID-19, researchers from all over the world worked together, sharing data and findings in real time, working in the same way, and science was seen to be much faster and more efficient.

Juan Corrales: The key points have already been touched upon by Mireia. Besides, it could be added that bringing science closer to society can make all citizens feel that science is something that belongs to us, not just to scientists or academics. It is something we can participate in and this can also help to perhaps stop hoaxes, fake news, to have a more exhaustive vision of the news that reaches us through social networks and to be able to filter out what may be real and what may be false.

4.What research should be published openly?

Juan Corrales: Right now, according to the law we have in Spain, the latest Law of science, all publications that are mainly financed by public funds or in which public institutions participatemust be published in open access. This has not really had much repercussion until last year, because, although the law came out two years ago, the previous law also said so, there is also a law of the Community of Madrid that says the same thing.... but since last year it is being taken into account in the evaluation that the ANECA (the Quality Evaluation Agency) does on researchers.. Since then, almost all researchers have made it a priority to publish their data and research openly. Above all, data was something that had not been done until now.

Mireia Alcalá: At the state level it is as Juan says. We at the regional level also have a law from 2022, the Law of science, which basically says exactly the same as the Spanish law. But I also like people to know that we have to take into account not only the state legislation, but also the calls for proposals from where the money to fund the projects comes from. Basically in Europe, in framework programmes such as Horizon Europe, it is clearly stated that, if you receive funding from the European Commission, you will have to make a data management plan at the beginning of your research and publish the data following the FAIR principles.

5.Among other issues, both CSUC and Consorcio Madroño are in charge of supporting entities and researchers who want to make their data available to the public. How should a process of opening research data be? What are the most common challenges and how do you solve them?

Mireia Alcalá: In our repository, which is called RDR (from Repositori de Dades de Recerca), it is basically the participating institutions that are in charge of supporting the research staff.. The researcher arrives at the repository when he/she is already in the final phase of the research and needs to publish the data yesterday, and then everything is much more complex and time consuming. It takes longer to verify this data and make it findable, accessible, interoperable and reusable.
In our particular case, we have a checklist that we require every dataset to comply with to ensure this minimum data quality, so that it can be reused. We are talking about having persistent identifiers such as ORCID for the researcher or ROR to identify the institutions, having documentation explaining how to reuse that data, having a licence, and so on. Because we have this checklist, researchers, as they deposit, improve their processes and start to work and improve the quality of the data from the beginning. It is a slow process. The main challenge, I think, is that the researcher assumes that what he has is data, because most of them don't know it. Most researchers think of data as numbers from a machine that measures air quality, and are unaware that data can be a photograph, a film from an archaeological excavation, a sound captured in a certain atmosphere, and so on. Therefore, the main challenge is for everyone to understand what data is and that their data can be valuable to others.
And how do we solve it? Trying to do a lot of training, a lot of awareness raising. In recent years, the Consortium has worked to train data curation staff, who are dedicated to helping researchers directly refine this data. We are also starting to raise awareness directly with researchers so that they use the tools and understand this new paradigm of data management.

Juan Corrales: In the Madroño Consortium, until November, the only way to open data was for researchers to pass a form with the data and its metadata to the librarians, and it was the librarians who uploaded it to ensure that it was FAIR. Since November, we also allow researchers to upload data directly to the repository, but it is not published until it has been reviewed by expert librarians, who verify that the data and metadata are of high quality. It is very important that the data is well described so that it can be easily found, reusable and identifiable.

As for the challenges, there are all those mentioned by Mireia - that researchers often do not know they have data - and also, although ANECA has helped a lot with the new obligations to publish research data, many researchers want to put their data running in the repositories, without taking into account that they have to be quality data, that it is not enough to put them there, but that it is important that these data can be reused later.

6.What activities and tools do you or similar institutions provide to help organisations succeed in this task?

Juan Corrales: From Consorcio Madroño, the repository itself that we use, the tool where the research data is uploaded, makes it easy to make the data FAIR, because it already provides unique identifiers, fairly comprehensive metadata templates that can be customised, and so on. We also have another tool that helps create the data management plans for researchers, so that before they create their research data, they start planning how they're going to work with it. This is very important and has been promoted by European institutions for a long time, as well as by the Science Act and the National Open Science Strategy.
Then, more than the tools, the review by expert librarians is also very important. There are other tools that help assess the quality of adataset, of research data, such as Fair EVA or F-Uji, but what we have found is that those tools at the end what they are evaluating more is the quality of the repository, of the software that is being used, and of the requirements that you are asking the researchers to upload this metadata, because all our datasets have a pretty high and quite similar evaluation. So what those tools do help us with is to improve both the requirements that we're putting on our datasets, on our datasets, and to be able to improve the tools that we have, in this case the Dataverse software, which is the one we are using.

Mireia Alcalá: At the level of tools and activities we are on a par, because we have had a relationship with the Madroño Consortium for years, and just like them we have all these tools that help and facilitate putting the data in the best possible way right from the start, for example, with the tool for making data management plans. Here at CSUC we have also been working very intensively in recent years to close this gap in the data life cycle, covering issues of infrastructures, storage, cloud, etc. so that, when the data is analysed and managed, researchers also have a place to go. After the repository, we move on to all the channels and portals that make it possible to disseminate and make all this science visible, because it doesn't make sense for us to make repositories and they are there in a silo, but they have to be interconnected. For many years now, a lot of work has been done on making interoperability protocols and following the same standards. Therefore, data has to be available elsewhere, and both Consorcio Madroño and we are everywhere possible and more.

7. Can you tell us a bit more about these repositories you offer? In addition to helping researchers to make their data available to the public, you also offer a space, a digital repository where this data can be housed, so that it can be located by users.
 

Mireia Alcalá: If we are talking specifically about research data, as we and Consorcio Madroño have the same repository, we are going to let Juan explain the software and specifications, and I am going to focus on other repositories of scientific production that CSUC also offers. Here what we do is coordinate different cooperative repositories according to the type of resource they contain.  So, we have TDX for thesis, RECERCAT for research papers, RACO for scientific journals or MACO, for open access monographs. Depending on the type of product, we have a specific repository, because not everything can be in the same place, as each output of the research has different particularities. Apart from the repositories, which are cooperative, we also have other spaces that we make for specific institutions, either with a more standard solution or some more customised functionalities. But basically it is this: we have for each type of output that there is in the research, a specific repository that adapts to each of the particularities of these formats.

Juan Corrales: In the case of Consorcio Madroño, our repository is called e-scienceData, but it is based on the same software as the CSUC repository, which is Dataverse.. It is open source software, so it can be improved and customised. Although in principle the development is managed from Harvard University in the United States, institutions from all over the world are participating in its development - I don't know if thirty-odd countries have already participated in its development.
 Among other things, for example,  the translations into Catalan have been done by CSUC, the translation into Spanish has been done by Consorcio Madroño and we have also participated in other small developments. The advantage of this software is that it makes it much easier for the data to be FAIR and compatible with other points that have much more visibility, because, for example, the CSUC is much larger, but in the Madroño Consortium there are six universities, and it is rare that someone goes to look for a dataset in the Madroño Consortium, in e-scienceData, directly. They usually search for it via Google or a European or international portal. With these facilities that Dataverse has, they can search for it from anywhere and they can end up finding the data that we have at Consorcio Madroño or at CSUC.

8. What other platforms with open research data, at Spanish or European level, do you recommend?

Juan Corrales:  For example, at the Spanish level there is the FECYT, the Spanish Foundation for Science and Technology, which has a box that collects the research data of all Spanish institutions practically. All the publications of all the institutions appear there: Consorcio Madroño, CSUC and many more.
Then, specifically for research data, there is a lot of research that should be put in a thematic repository, because that's where researchers in that branch of science are going to look. We have a tool to help choose the thematic repository. At the European level there is Zenodo, which has a lot of visibility, but does not have the data quality support of CSUC or the Madroño Consortium. And that is something that is very noticeable in terms of reuse afterwards.

Mireia Alcalá: At the national level, apart from Consorcio Madroño's and our own initiatives, data repositories are not yet widespread. We are aware of some initiatives under development, but it is still too early to see their results. However, I do know of some universities that have adapted their institutional repositories so that they can also add data. And while this is a valid solution for those who have no other choice, it has been found that software used in repositories that are not designed to handle the particularities of the data - such as heterogeneity, format, diversity, large size, etc. - are a bit lame. Then, as Juan said, at the European level, it is established that Zenodo is the multidisciplinary and multiformat repository, which was born as a result of a European project of the Commission. I agree with him that, as it is a self-archiving and self-publishing repository - that is, I Mireia Alcalá can go there in five minutes, put any document I have there, nobody has looked at it, I put the minimum metadata they ask me for and I publish it -, it is clear that the quality is very variable. There are some things that are really usable and perfect, but there are others that need a little more TLC. As Juan said, also at the disciplinary level it is important to highlight that, in all those areas that have a disciplinary repository, researchers have to go there, because that is where they will be able to use their most appropriate metadata, where everybody will work in the same way, where everybody will know where to look for those data.... For anyone who is interested there is a directory called re3data, which is basically a directory of all these multidisciplinary and disciplinary repositories. It is therefore a good place for anyone who is interested and does not know what is in their discipline. Let him go there, he is a good resource.

9. What actions do you consider to be priorities for public institutions in order to promote open knowledge?

Mireia Alcalá: What I would basically say is that public institutions should focus on making and establishing clear policies on open science, because it is true that we have come a long way in recent years, but there are times when researchers are a bit bewildered. And apart from policies, it is above all offering incentives to the entire research community, because there are many people who are making the effort to change their way of working to become immersed in open science and sometimes they don't see how all that extra effort they are making to change their way of working to do it this way pays off. So I would say this: policies and incentives.

Juan Corrales: From my point of view, the theoretical policies that we already have at the national level, at the regional level, are usually quite correct, quite good. The problem is that often no attempt has been made to enforce them. So far, from what we have seen for example with ANECA - which has promoted the use of data repositories or research article repositories - they have not really started to be used on a massive scale. In other words, incentives are necessary, and not just a matter of obligation. As Mireia has also said, we have to convince researchers to see open publishing as theirs, as it is something that benefits both them and society as a whole. What I think is most important is that: the awareness of researchers

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The EU Open Data Days 2025 is an essential event for all those interested in the world of open data and innovation in Europe and the world. This meeting, to be held on 19-20 March 2025, will bring together experts, practitioners, developers, researchers and policy makers to share knowledge, explore new opportunities and address the challenges facing the open data community.

The event, organised by the European Commission through data.europa.eu, aims to promote the re-use of open data. Participants will have the opportunity to learn about the latest trends in the use of open data, discover new tools and discuss the policies and regulations that are shaping the digital landscape in Europe.

Where and when does it take place?

El evento se celebrará en el Centro Europeo de Convenciones de Luxemburgo, aunque también se podrá seguir online, con el siguiente horario:

• Wednesday 19 March 2025, from 13:30 to 18:30.
• Thursday 20 March 2025, from 9:00 to 15:30.

What issues will be addressed?

The agenda of the event is already available, where we find different themes, such as, for example:

• Success stories and best practices: the event will be attended by professionals working at the frontline of European data policy to share their experience. Among other issues, these experts will provide practical guidance on how to inventory and open up a country's public sector data, address the work involved in compiling high-value datasets or analyse perspectives on data reuse in business models. Good practices for quality metadata or improved data governance and interoperability will also be explained.
• Focus on the use of artificial intelligence (AI): open data offers an invaluable source for the development and advancement of AI. In addition, AI can optimise the location, management and use of this data, offering tools to help streamline processes and extract greater insight. In this regard, the event will address the potential of AI to transform open government data ecosystems, fostering innovation, improving governance and enhancing citizen participation. The managers of Norway's national data portal will tell how they use an AI-based search engine to improve data localisation. In addition, the advances in linguistic data spaces and their use in language modelling will be explained, and how to creatively combine open data for social impact will be explored.
• Learning about data visualisation: event attendees will be able to explore how data visualisation is transforming communication, policy making and citizen engagement. Through various cases (such as the family tree of 3,000 European royals or UNESCO's Intangible Cultural Heritage relationships) it will show how iterative design processes can uncover hidden patterns in complex networks, providing insights into storytelling and data communication. It will also address how design elements such as colour, scale and focus influence the perception of data.
• Examples and use cases: multiple examples of concrete projects based on the reuse of data will be shown, in fields such as energy, urban development or the environment. Among the experiences that will be shared is a Spanish company, Tangible Data, which will tell how physical data sculptures turn complex datasets into accessible and engaging experiences.

These are just some of the topics to be addressed, but there will also be discussions on open science, the role of open data in transparency and accountability, etc.

Why are EU Open Data Days so important?

Access to open data has proven to be a powerful tool for improving decision-making, driving innovation and research, and improving the efficiency of organisations. At a time when digitisation is advancing rapidly, the importance of sharing and reusing data is becoming increasingly crucial to address global challenges such as climate change, public health or social justice.

The EU Open Data Days 2025 are an opportunity to explore how open data can be harnessed to build a more connected, innovative and participatory Europe.

In addition, for those who choose to attend in person, the event will also be an opportunity to establish contacts with other professionals and organisations in the sector, creating new collaborations that can lead to innovative projects.

How can I attend?

To attend in person, it is necessary to register through this link. However, registration is not required to attend the event online.

If you have any queries, an e-mail address has been set up to answer any questions you may have about the event: EU-Open-Data-Days@ec.europa.eu.

More information on the event website.

IMPaCT, the Infrastructure for Precision Medicine associated with Science and Technology, is an innovative programme that aims to revolutionise medical care. Coordinated and funded by the Carlos III Health Institute, it aims to boost the effective deployment of personalised precision medicine.

Personalised medicine is a medical approach that recognises that each patient is unique. By analysing the genetic, physiological and lifestyle characteristics of each person, more efficient and safer tailor-made treatments with fewer side effects are developed.  Access to this information is also key to making progress in prevention and early detection, as well as in research and medical advances.

IMPaCT consists of 3 strategic axes:

• Axis 1 Predictive medicine: COHORTE Programme. It is an epidemiological research project consisting of the development and implementation of a structure for the recruitment of 200,000 people to participate in a prospective study. 
• Strand 2 Data science: DATA Programme. It is a programme focused on the development of a common, interoperable and integrated system for the collection and analysis of clinical and molecular data. It develops criteria, techniques and best practices for the collection of information from electronic medical records, medical images and genomic data.
• Axis 3 Genomic medicine: GENOMICS Programme. It is a cooperative infrastructure for the diagnosis of rare and genetic diseases. Among other issues, it develops standardised procedures for the correct development of genomic analyses and the management of the data obtained, as well as for the standardisation and homogenisation of the information and criteria used.

In addition to these axes, there are two transversal strategic lines: one focused on ethics and scientific integrity and the other on internationalisation, as summarised in the following visual.

Source: IMPaCT-Data

In the following, we will focus on the functioning and results of IMPaCT-Data, the project linked to axis 2.

IMPaCT-Data, an integrated environment for interoperable data analysis

IMPaCT-Data is oriented towards the development and validation of an environment for the integration and joint analysis of clinical, molecular and genetic data, for secondary use, with the ultimate goal of facilitating the effective and coordinated implementation of personalised precision medicine in the National Health System. It is currently made up of a consortium of 45 entities associated by an agreement that runs until 31 December 2025.

Through this programme, the aim is to create a cloud infrastructure for medical data for research, as well as the necessary protocols to coordinate, integrate, manage and analyse such data. To this end, a roadmap with the following technical objectives is followed:

Source: IMPaCT-Data.

Results of IMPaCT-Data

As we can see, this infrastructure, still under development, will provide a virtual research environment for data analysis through a variety of services and products:

• IMPaCT-Data Federated Cloud. It includes access to public and access-controlled data, as well as tools and workflows for the analysis of genomic data, medical records and images. At this video shows how federated user access and job execution is realised through the use of shared computational resources. This allows for viewing and accessing the results in HTML and raw format, as well as their metadata. For those who want to go deeper into the user access options, please see this video another video where the linking of institutional accounts to the IMPaCT-Data account and the use of passports and visas for local access to protected data is shown.
• Compilation of software tools for the analysis of IMPaCT-Data. These tools are publicly accessible through the iMPaCT-Data domain  domain at bio.tools a registry of software components and databases aimed at researchers in the field of biological and biomedical sciences. It includes a wide range of tools. On the one hand, we find general solutions, for example, focused on privacy through actions related to data de-identification and anonymisation (FAIR4Health Data Privacy Tool). On the other hand, there are specific tools, focused on very specific issues, such as gene expression meta-analysis (ImaGEO).
• Guidelines with recommendations and good practices for the collection of medical information. There are currently three guides available: "IMPaCT-Data recommendations on data and software", "IMPaCT-Data additional considerations to the IMPaCT 2022 call for projects" and "IMPaCT-Data recommendations on data and software" .

In addition to these, there are a number of deliverables related to technical aspects of the project, such as comparisons of techniques or proofs of concept, as well as scientific publications.

Driving use cases through demonstrators

One of the objectives of IMPaCT-Data is to contribute to the evaluation of technologies associated with the project's developments, through an ecosystem of demonstrators. The aim is to encourage contributions from companies, organisations and academic groups to drive improvements and achieve large-scale implementation of the project.

To meet this objective, different activities are organised where specific components are evaluated in collaboration with members of IMPaCT-Data. One example is the oRBITS terminology server for the encoding of clinical phenotypes into HPO (Human Phenotype Ontology) aimed at automatically extracting and encoding information contained in unstructured clinical reports using natural language processing. It uses the HPO terminology, which aims to standardise the collection of phenotypic data, making it accessible for further analysis.

Another example of demonstrators refers to the sharing of virtualised medical data between different centres for research projects, within a governed, efficient and secure environment, where all data quality standards defined by each entity are met within a governed, efficient and secure environment, where all data quality standards defined by each entity are met.

A strategic project aligned with Europe

IMPaCT-Data fits directly into the National Strategy for the Secondary Use of National Health System Data, as described in the PERTE on health (Strategic Projects for Economic Recovery and Transformation), with its knowledge, experience and input being of great value for the development of the National Health Data Space.

Furthermore, IMPaCT-Data's developments are directly aligned with the guidelines proposed by GAIA-X both at a general level and in the specific health environment.

The impact of the project in Europe is also evidenced by its participation in the european project GDI (Genomic Data Infrastructure) which aims to facilitate access to genomic, phenotypic and clinical data across Europe, where IMPaCT-Data is being used as a tool at national level.

This shows that thanks to IMPaCT-Data it will be possible to promote biomedical research projects not only in Spain, but also in Europe, thus contributing to the improvement of public health and individualised treatment of patients.

In the medical sector, access to information can transform lives. This is one of the main reasons why data sharing and open data communities or open science linked to medical research have become such a valuable resource. Medical research groups that champion the use and reuse of data are leading this transformation, driving innovation, improving collaboration and accelerating the advancement of science.

As we saw in the case of FISABIO Fundation, the open data in the health sector foster collaboration between researchers, speed up the process of validating study results and, ultimately, help save lives. This trend not only facilitates faster discoveries, but also helps to create more effective solutions. In Spain, the Consejo Superior de Investigación Científica (CSIC) is committed to open data and some renowned hospitals also share their research results while protecting their patients' sensitive data.

In this post, we will explore how research groups and health communities are sharing and reusing data to drive groundbreaking research and showcase more inspiring use cases. From developing new treatments to identifying trends in public health, data is redefining the medical research landscape and opening up new opportunities to improve global health.

Medical research groups committed to working with shared data

In Spain, there are several research groups and communities that share their findings more freely through platforms and databases that facilitate global collaboration and data reuse in the field of health. Below, we highlight some of the most influential cases, demonstrating how access to information can accelerate scientific progress and improve health outcomes.

• H2O - Health Outcomes Observatory clinical data repository

H2O is a strategic public-private partnership to create a robust data infrastructure and governance model to collect and incorporate patient outcomes at scale into health decision-making at the individual and population level. H2O's approach puts patients in ultimate control of their health and ensures that only they exercise that control  and ensures that only they exercise that control. Hospitals from all over the world participate in this consortium, including the Spanish Hospital Universitario Fundación Jiménez Díaz and the Hospital Vall d'Hebron. The Spain Research Unit collects patient-reported health outcomes and other clinical data to build an observatory to improve patient care.

• Carlos III Health Institute: IMPaCT open science research projects

Within the framework of the IMPaCT infrastructure, different projects are being developed and approved as part of the Action in Health's grants for Precision Personalised Medicine Research Projects:

1. COHORTE Programme - Predictive Medicine
2. DATA programme: Data science
3. GENOMICS Programme - Genomic medicine

The information, data, metadata and scientific products generated in IMPaCT are open access, to make science more accessible, efficient, democratic and transparent. Hospitals and research institutes from all over Spain are participating in this project.

• POP Health Data: medical research project of the Instituto de Salud Carlos III (ISCIII) and the Platform of Patients' Organisations (POP)

This is a data project developed collaboratively between ISCIII and POP to improve knowledge and evidence on the clinical, occupational and social reality of chronic patients, and social reality of chronic patients, which is crucial for us. This initiative involves 36 national patient organisations, 16 scientific societies and 3 public administrations, including the Ministry of Social Rights and Agenda 2030, the Carlos III Health Institute and the Spanish Agency for Medicines and Health Products.

• European Cancer Imaging Initiative european project to provide cancer imaging and support cancer research.

One of the objectives of the European Cancer Plan is to maximise the potential of data and digital technologies such as artificial intelligence (AI) or high performance computing (HPC). The cornerstone of the initiative will be a federated European infrastructure for cancer imaging data, developed by the European Federation of Cancer Imaging (EUCAIM). The project starts with 21 clinical centres in 12 countries, including 4 Spanish centres located in Valencia, Barcelona, Seville and Madrid.

• 4CE: Research Consortium

It is an international consortium for the study of the COVID-19 pandemic using electronic health record (EHR) data. The aim of the project - led by the international international academic user group i2b2 - isto inform clinicians, epidemiologists and the general public about COVID-19 patients with data acquired through the healthcare process. The platform offers aggregated data that are available on the project's own website divided between adult and paediatric data. In both cases, the data must be used for academic and research purposes; the project does not allow the use of the data for medical guidance or clinical diagnosis.

In conclusion, the commitment to data sharing and reuse in medical research is proving to be a fundamental catalyst for scientific progress and the improvement of public health. Through initiatives such as H2O, IMPaCT, and the European Cancer Imaging Initiative, we see how accessibility in data management is redefining the way we approach disease research and treatment.

The integration of data analytics practices promises a future where innovation in healthcare is achieved faster, more equitably and efficiently, thus delivering better outcomes for patients globally.

From September 25^th to 27^th , Madrid will be hosting the fourth edition of the Open Science Fair, an international event on open science that will bring together experts from all over the world with the aim of identifying common practices, bringing positions closer together and, in short, improving synergies between the different communities and services working in this field. 

This event is an initiative of OpenAIRE, an organisation that aims to create more open and transparent academic communication. This edition of the Open Science Fair is co-organised by the Spanish Foundation for Science and Technology (FECYT), which depends on the Ministry of Science and Innovation, and is one of the events sponsored by the Spanish Presidency of the spanish Presidency of the Council of the European Union. 

The current state of open science

Science is no longer the preserve of scientists. Researchers, institutions, funding agencies and scientific publishers are part of an ecosystem that carries out work with a growing resonance with the public and a greater impact on society. In addition, it is becoming increasingly common for research groups to open up to collaborations with institutions around the world. Key to making this collaboration possible is the availability of data that is open and available for reuse in research.

However, to enable international and interdisciplinary research to move forward, it is necessary to ensure interoperability between communities and services, while maintaining the capacity to support different workflows and knowledge systems. 

The objectives and programme of the Open Science Fair

In this context, the Open Science Fair 2023 is being held, with the aim of bringing together and empowering open science communities and services, identifying common practices related to open science to analyse the most suitable synergies and, ultimately sharing experiences that are developed in different parts of the world. 

The event has an interesting programme that includes keynote speeches from relevant speakers, round tables, workshops, and training sessions, as well as a demonstration session. Attendees will be able to share experiences and exchange views, which will help define the most efficient ways for communities to work together and draw up tailor-made roadmaps for the implementation of open science. 

This third edition of Open Science will focus on 'Open Science for Future Generations' and the main themes it will address, as highlighted on the the event's website, are:

• Progress and reform of research evaluation and open science. Connections, barriers and the way forward.
• Impact of artificial intelligence on open science and impact of open science on artificial intelligence.
• Innovation and disruption in academic publishing.
• Fair data, software and hardware.
• Openness in research and education.
• Public engagement and citizen science.

Open science and artificial intelligence 

The artificial intelligence is gaining momentum in academia through data analysis. By analysing large amounts of data, researchers can identify patterns and correlations that would be difficult to reach through other methods. The use of open data in open science opens up an exciting and promising future, but it is important to ensure that the benefits of artificial intelligence are available to all in a fair and equitable way. 

Given its high relevance, the Open Science Fair will host two keynote lectures and a panel discussion on 'AI with and for open science'. The combination of the benefits of open data and artificial intelligence is one of the areas with the greatest potential for significant scientific breakthroughs and, as such, will have its place at the event is one of the areas with the greatest potential for significant scientific breakthroughs and, as such, will have its place at the event. It will look from three perspectives (ethics, infrastructure and algorithms) at how artificial intelligence supports researchers and what the key ingredients are for open infrastructures to make this happen. 

The programme of the Open Science Fair 2023 also includes the presentation of a demo of a tool for mapping the research activities of the European University of Technology EUt+ by leveraging open data and natural language processing. This project includes the development of a set of data-driven tools. Demo attendees will be able to see the developed platform that integrates data from public repositories, such as European research and innovation projects from CORDIS, patents from the European Patent Office database and scientific publications from OpenAIRE. National and regional project data have also been collected from different repositories, processed and made publicly available. 

These are just some of the events that will take place within the Open Science Fair, but the full programme includes a wide range of events to explore multidisciplinary knowledge and research evaluation. 

Although registration for the event is now closed, you can keep up to date with all the latest news through the hashtag #OSFAIR2023 on Twitter, LinkedIn and Facebook, as well as on the event's website website. 

In addition, on the website of datos.gob.es and on our social networks you can keep up to date on the most important events in the field of open data, such as those that will take place during this autumn.

Nowadays, research methods (sensors, technological devices, simulations, etc.) generate a large amount of data that, in open and reusable format, conceals a great re-use potential for other researchers, public administrations, private companies or users. That is why last year the European Commission agreed on an international commitment to promote open science during the Competitiveness Council, ensuring that all results of EU research are available without any technical, legal or financial constraints.

Nevertheless, open access and the dissemination of scientific information involves a series of legal challenges - intellectual property, privacy and personal data protection - that require ad hoc solutions to make the open science movement viable. In this context, the eighth edition of the OpenAIRE workshop will be held on Tuesday 4 April in the framework of the Research Data Alliance (RDA) plenary in Barcelona, dedicated to exploring the legal barriers that hinder the open research data and identifying possible solutions.

During the event attendees will be familiarized with those normative aspects directly related to the open research data, providing specific and pragmatic recommendations so such barriers do not hinder the opennes and re-use of scientific information by the experts of OpenAIRE.

In this project, funded by the European Commission, work is done to encourage and promote open research and optimize the access to European scientific data, while offering a network of repositories for free access to knowledge and research results on health, energy, environment, ICT and social sciences. At the same time, OpenAIRE organizes different workshops, such as the event that will take place in the city of Barcelona, to raise awareness about open science, its opportunities and challenges.