Open data and health: technological context, stakeholders and legal framework

Spain is the second country with the highest life expectancy in the world, only behind Japan. Spaniards live 83 years on average. This positive data is stained by a negative one: the low birth rate, which is leading us towards a population aging. This situation means that we need a more efficient health system to continue providing quality health services to citizens.

As in other sectors, the improvement of efficiency goes through the necessary digital transformation, in which data in general - and open data in particular - have a leading role. Open data can help us better understand the situation of patients and, together with technologies such as big data or artificial intelligence systems, facilitate early detection of diseases. In short, they can help improve both the management and the provision of services.

But in an area where patient privacy is essential, we have a series of doubts: What types of data can be opened? What does the legislation say about it?

The report "Open data and health: technological context, stakeholders and legal framework", prepared by Julián Valero, tries to shed some light on this situation. For this, the following objectives are set:

1. Knowing the conditions, limitations and restrictions imposed by current legal regulations.
2. Posing how the guarantees offered by the Law should be adapted to a new reality based on technological innovation.

The report begins by showing the current situation of the Spanish health system, gathering the challenges to be faced, but also the opportunities that come hand in hand with new technological trends, such as Internet of Things or the aforementioned Artificial Intelligence.

Once the context has been explained, the report focuses on the different stakeholders involved in the provision of health services, both public and private, and the main laws and regulations that affect each group. The novelties of the General Data Protection Regulation (GDPR) and its impact on the opening of health data are also addressed.

The report ends with a series of conclusions and recommendations to promote public policies in the field of health that drive improvements in the provision of health services.

You can download the full report below.