6 posts found
Safe rooms in Spain: What kind of data can researchers access?
There are a number of data that are very valuable, but which by their nature cannot be opened to the public at large. These are confidential data which are subject to third party rights that prevent them from being made available through open platforms, but which may be essential for research that p…
IMPaCT-Data, medical data integration to boost precision medicine
IMPaCT, the Infrastructure for Precision Medicine associated with Science and Technology, is an innovative programme that aims to revolutionise medical care. Coordinated and funded by the Carlos III Health Institute, it aims to boost the effective deployment of personalised precision medicine.…
Health research and data groups: examples at the forefront of the field
In the medical sector, access to information can transform lives. This is one of the main reasons why data sharing and open data communities or open science linked to medical research have become such a valuable resource. Medical research groups that champion the use and reuse of data are leading th…
The agreement to provide statistical data to researchers, in the context of the Data Governance Regulation
The European Union has devised a fundamental strategy to ensure accessible and reusable data for research, innovation and entrepreneurship. Strategic decisions have been made both in a regulatory and in a material sense to build spaces for data sharing and to foster the emergence of intermediar…
Data activism: an increasingly relevant practice in the age of platforms
Data activism is an increasingly significant citizen practice in the platform era for its growing contribution to democracy, social justice and rights. It is an activism that uses data and data analysis to generate evidence and visualisations with the aim of revealing injustices, improving peop…
Trends in open data around the world
In view of the series of current and future trends around the future of open data indicated in our report, we wanted to check to what extent these - or similar - trends are already present in the global open data community. To this end, we have verified the current activities and future plans of sev…
